I gave birth to the most perfect little girl named Isis on November 11. She weighed 7 lbs, 7 oz, and she came out screaming, ready for whatever the world had to throw at her.
A her parents knew she would change our lives forever and we couldn’t have been more excited. Isis met all her milestones at age appropriate times. She held her head up pretty much from day one; she rolled over, sat up, crawled and walked without a problem.
Our little 11:11 angel spoke about 20 words by her 2nd birthday. She would loudly say “WHATS THAT?” to get everyone’s attention and always made sure we answered her. After she turned 2, she stopped learning new words and slowly stopped saying the words she once knew.
After months, we finally received an answer; July 3, 2013 at 8 p.m. we received the most heartbreaking, stomach turning phone call from her doctor explaining that her test results came back positive for RETT SYNDROME. Never in a million years did we expect that. At that moment I dropped to my knees and cried.
However, our family has turned heartache into something meaningful, not only for our daughter, but for all anyone who is affected by Rett Syndrome. As a mother to a little girl with Rett Syndrome, I’ve created Pretty Halos foundation as a fun and beautiful way to help other families impacted by Rett Syndrome by providing them scholarships for the things they need and growing awareness for Rett Syndrome one Halo at a time.